Nightmares…

So its 2:15am and I cannot go to sleep for fear of having a nightmare. To some that probably sounds extremely childish but I can’t help but wonder what if. What if these dreams do come true how would they end. I definitely DO NOT want any of these nightmares to come true because most of them is either basically running for my life or having to shoot and kill to save my life or my family’s life. The only bit of relief I can think is I’m a somewhat skilled shooter and if it came down to it I could probably do it. I don’t want to but I could if my or my family’s life depended on it.

I can’t help but wonder if these nightmares are associated with something such as a medicine. In July I was diagnosed with Syringomyelia, which those of you that’ve read this blog will know, and my neurosurgeon sent me to see a neurologist because my migraines had gotten worse. So the neurologist started me on Cymbalta, which I think that’s what’s triggered them to start. I had a nightmare maybe every 6 months before starting the medicine and now I’m having 3+ per week and that makes for a horrible sleep schedule! I’ve also noticed that if I sleep on my back or when I’m awaken by one I’m always on my back. I’m also wondering if it may have something to do with Sleep Paralysis because when I wake up I physically cannot move and I can lay there for up to 10 minutes without being able to move. I did some research a while back and learned some tricks to bring you out of the sleep paralysis but it definitely doesn’t make it any easier to cope with!

I’m contemplating going to see someone but who in the world would you see about sleep!!! I had a sleep study done when I was in my teenage years but I don’t remember who I seen that sent me to have it! I do remember from that study that my brain never shuts off and I do not go into R.E.M. sleep, or so it said then. So I guess when I see my PCP I will ask her or either I will schedule a follow up with my NL.

One good thing I can report is in March of 2012 I had a surgery done for some female problems and since then I’ve lost about 60 pounds! I’m pretty stoked about that, even if others are doubting I actually have.

Oh and one other thing, any and all prayers will be appreciated! My 5 year old daughter who has CVS had an episode tonight, we’re hoping its over but we really never know!

So I guess that’s it for now! Will update again soon!!!

Much love and God Bless!!!
Amber

Pins and Needles…

The pins and needles in my right side is getting worse and more prominent. I’m having around four headaches a week and they aren’t small ones, they’re raging migraines. My left hand or should I say my pinky and ring finger were pretty much completely numb and it scared me to death! Well I go back to the neurologist this friday I believe it is. I need to make an appointment with my family doctor but I’m wanting to wait until one of the old doctors come back to town because I can’t stand some of the office staff my current doctor employees. I cannot stand being talked to like I’m stupid and that’s exactly how she always talks to me. I don’t know what that lady’s problem is but I’m not gonna stand for it anymore. Anyways I’m hoping things start getting better as far as the headaches!!!!!

New Neurologist!

Hey guys,

Its been a little bit but I’ve been doing some crafts and its been keeping me pretty busy!

I went to see the new neurologist, Dr. Perrien last week! He was awesome, might I add! He did some nerve studies in his office because I’ve been having some really sharp, severe pains in the back of my arms, primarily the right one and my right foot keeps getting the pins and needles sensations. Everything looked good on the nerve studies and he sent me to have some labs done because he is thinking the sensation in my right foot could be caused from diabetes. I had an A1c, Thyroid panel, B12 and something else but I can’t remember what it was. Well the nurse called me at the beginning of this week and my B12 is really low and she said that I was borderline diabetic, although my A1c was only 5.6. So now I am going to follow up with my family doctor so that she can treat me for those things. He started me on Nortriptyline (I think I spelled that right) to try and help with the migraines and see if it will help with some of the pain in my back and legs.

Last Thursday, I seen Dr. Clark, the neurosurgeon, again and he said that I don’t have to come back to see him until next August!!! YAY! He seems to think that I Hydromyelia instead of Syringomyelia. Its basically the same and carries the same risks, except with Hydromyelia it is connected to the fourth ventricle of the brain. In the womb you have a cord thar runs down the center of your spinal cord and after birth it is suppose to close up. Obviously mine didn’t. So he is just going to keep an eye on it before we proceed with the shunt.

So this is where we stand right now as far as doctors go, hoping I can take a couple weeks off from going to the doctor because it seems that since diagnosis in July, that’s all.I do anymore!

I am going to have to call my family doctor because my blood pressure is staying high. Has anyone else experienced this? I would love to hear your thoughts, comments and stories!

Hope everyone has a wonderful weekend and God Bless!

WAR EAGLE!!!